What is Multiple Sclerosis (MS), like? I see the question “how do you explain MS to others?” frequently in MS social media support groups. If the information is needed to tell adult loved ones then the suggestion to take the loved one to their next MS neurologist appointment is given. There are usually a few… Continue reading What is Multiple Sclerosis (MS), like?
Do Not End Up On The Floor Naked. That is an important goal for me. I think this is an unspoken goal my kids have for me as well. I know one kid specifically asked that I not fall. At the time I agreed easily as I had yet been unable to get back up.… Continue reading Do NOT End Up On The Floor Naked
May I help you? What a magical phrase! We hear it when struggling and instantly feel a level of relief. It tells us that: Someone sees we are struggling;Someone wants to help us;Someone respects our space; If they add "How" or "What will help" or "I will stay here and help how you ask" then… Continue reading May I help you?
Rollators are a mobility device. They are a step up from canes for providing stability. For people with stamina issues a rollator with a seat provides a place to sit and rest also. I have used a rollator with a seat for about 2 years for these reasons. I have also found the rollator useful… Continue reading Rollator, the new paper clip?
With MS you frequently run into difficulty doing something that was easy the day before. Saying some equivalent to "Errr" will not make it suddenly work. It will help to get the frustration out. But then you are facing the need to do the task/activity or skip it. Sometimes skipping for now works. If now… Continue reading Tips/Hacks
Are you planning or considering changing your diet to be gluten free? One of the first questions newly diagnosed MS patients ask is "do I need to follow a special diet?" Gluten free or a diet that requires gluten free is a popular response. I became gluten free and this is what it is like… Continue reading Going Gluten Free?
We have all seen at least one thing we wish we hadn't. We may have even said "Really??!! Thanks a lot! I can't ever unsee that!" As MS patients there are some symptoms we want to remain invisible to others. In the safety zone of a support group we will share details, stories, and even… Continue reading I can’t unsee that!
Road To Diagnosis I am not a trained medical professional. I am an MS patient, Snowflake, Warrior, and a self proclaimed Gladiator. The path to a MS diagnosis is as varied as there are MS Snowflake Warriors. It will depend on the presenting symptoms, the types of medical professional help sought, and the skills of… Continue reading My Multiple Sclerosis(MS) and Me, part 3
I am not a trained medical professional. I am a person with Multiple Sclerosis. A MS Gladiator. I left off last time saying enough snowflakes can create an avalanche of force against MS. You see, MS Snowflakes are also known as MS Warriors. We frequently call each other Warrior Strong. Strong Warriors are needed to… Continue reading Multiple Sclerosis (MS) and Me, part 2
I am not a trained medical professional. I am a person with Multiple Sclerosis. A chronic disease patient. A Snowflake. Multiple Sclerosis, MS, is an autoimmune disease. Which means the body’s immune system is attacking the host’s body. Attack of the body snatchers? Seems like it, but this is not science fiction. No hero will come… Continue reading Multiple Sclerosis(MS) and Me