Do Not End Up On The Floor Naked. That is an important goal for me. I think this is an unspoken goal my kids have for me as well. I know one kid specifically asked that I not fall. At the time I agreed easily as I had yet been unable to get back up.… Continue reading Do NOT End Up On The Floor Naked
Category: MS
May I help you?
May I help you? What a magical phrase! We hear it when struggling and instantly feel a level of relief. It tells us that: Someone sees we are struggling;Someone wants to help us;Someone respects our space; If they add "How" or "What will help" or "I will stay here and help how you ask" then… Continue reading May I help you?
Rollator, the new paper clip?
Rollators are a mobility device. They are a step up from canes for providing stability. For people with stamina issues a rollator with a seat provides a place to sit and rest also. I have used a rollator with a seat for about 2 years for these reasons. I have also found the rollator useful… Continue reading Rollator, the new paper clip?
Transport and Power Wheelchair Adventures
I promised wheelchair adventure stories. I have about a year’s worth of experience with wheelchairs, a transport wheelchair and a power wheelchair, and yes I have already collected adventure stories. A transport chair is a wheelchair that is meant for a person to push and not for the rider to operate. I first became acquainted… Continue reading Transport and Power Wheelchair Adventures
Mobility Tips 1 of ?
In online MS support groups I have seen many questions related to "How many of you use 'x'?" and "What do you use when 'y'?" Sometimes I ask these questions. When I see a question which has a device/tool I have used + activity/situation I have experienced I am found offering my experiences. As I… Continue reading Mobility Tips 1 of ?
In This Corner…
Last time, I wrote about making backup plans when you have trouble using a tried and true plan. This is ingrained into my daily life. I was raised to figure out what kind of thing I needed for a tool. Then to think what items in the house could be that tool. There was even… Continue reading In This Corner…
Tips/Hacks
With MS you frequently run into difficulty doing something that was easy the day before. Saying some equivalent to "Errr" will not make it suddenly work. It will help to get the frustration out. But then you are facing the need to do the task/activity or skip it. Sometimes skipping for now works. If now… Continue reading Tips/Hacks
Going Gluten Free?
Are you planning or considering changing your diet to be gluten free? One of the first questions newly diagnosed MS patients ask is "do I need to follow a special diet?" Gluten free or a diet that requires gluten free is a popular response. I became gluten free and this is what it is like… Continue reading Going Gluten Free?
MS Diet?
I am not a medical professional. I am a MS patient and a self proclaimed MS Gladiator. Frequent MS newbie questions are what is MS, what do I do now, do I need to eat different, what do I need to know for now? It is so easy to feel overwhelmed when you are first… Continue reading MS Diet?
I can’t unsee that!
We have all seen at least one thing we wish we hadn't. We may have even said "Really??!! Thanks a lot! I can't ever unsee that!" As MS patients there are some symptoms we want to remain invisible to others. In the safety zone of a support group we will share details, stories, and even… Continue reading I can’t unsee that!
Life, Humor, and MS 