I have purchased a variety of items that I thought would make tasks easier for me and my MS symptoms. Some have worked well and some have not. Many were recommended based on my symptoms, some were brainstormed, and some I stumbled upon. My issues are mobility, weak dominant hand/arm, balance and stamina. I have… Continue reading What works?
Life is a balance between eating, resting, and activity. When you have MS, the balance adds on levels of complexity. Professionals will give contradictory advice “use it or lose it” and “conserve energy”. Ok. How?? You will also hear encouraging mantras. “Manage your symptoms.” “Manage your MS.” “Don’t let them manage you.” More great advice… Continue reading MS Instructions
This is a motto most people will expect for certain purchases like cars and also yard sale items like puzzles and board games. However most people will trust the guidance of professionals for other purchases. This is especially true if this is a professional you are paying for their expertise. As much as I lean… Continue reading Buyer Beware
Hit the road with independence!
This can mean different things to different people. If you are 16 and just received your driver's license it means you can finally drive without a co-pilot saying "slow down", "you're too close", or "you see the light, right?" Or maybe your co-pilot acted very afraid by constantly stomping on a non-existent brake pedal. I… Continue reading Hit the road with independence!
I am going to focus the next several blogs on tips for specific MS symptoms. Everyone's MS journey is unique including the road to diagnosis, medicines, symptoms, and symptom severity. When a new symptom pops up, please contact your MS provider so it can be treated soonest AND determine if it is MS or medicine… Continue reading Heat/Humidity Sensitivity
Gluten Free and Dairy Free Tips
I have talked about what it is like going gluten free. I am also dairy free. Here are some tips I found that make these changes easier, or at least a little bit more tasty. Gluten Free Going gluten free showed me how big a fan of gluten my taste buds are. My taste buds… Continue reading Gluten Free and Dairy Free Tips
Travel Tips part 1
I bet I am not the only one looking towards the time we can all travel again. Anyone else starting to plan it out, even if only in your mind? This is the start of a blog series on traveling with accessibility issues. Let me start with lessons I learned with 4 different lodgings during… Continue reading Travel Tips part 1
My MS Story
I know I have tried to tell this before. I feel this is one story I will periodically need to retell in order to gain perspective and growth. Why again now? Today a picture came up in my FB feed from the beginning. Not the beginning of my MS, but the beginning of the back… Continue reading My MS Story
Winning the Shower Battle. This is one MS battle that will really make or break your whole day. Yes, there are many ways to bathe. A shower is my favorite. For me there is nothing else like the feeling of water washing away the world outside the bathroom door. Even if it is only temporary.… Continue reading Shower Tips/Hacks
May I help you?
May I help you? What a magical phrase! We hear it when struggling and instantly feel a level of relief. It tells us that: Someone sees we are struggling;Someone wants to help us;Someone respects our space; If they add "How" or "What will help" or "I will stay here and help how you ask" then… Continue reading May I help you?